Breathies and sleepies.

by

Taking a break from the inevitable writing contest blog entries, let’s move on to Snort’s nine prescriptions this morning. The past three nights, I/we have calculated when he will need his inhalers (we are currently trying to stretch to six hours between ten puffs, but he’s not quite there yet). Both nights had different calculations on when he’d need that little bit of extra help to clear his airway – and both nights he woke up exactly five minutes before a dose.

I’m not being all exaggerated here: we are talking EXACTLY five minutes before EVERY dose of breathies.

One morning I said to TMD, ‘You know, I think he may be waking in the night because his breathing is disrupted. I wonder what would happen if we gave him breathies before bed.’ I paused. ‘Actually, is this a conversation we’ve had before? Why does it feel familiar?’

TMD said – ohyesshedid – that when we saw his pediatric allergist doctor, she suggested that we give him inhalers every night before bed, as while it was still completely normal for a kid to keep waking through the night, she thought he was actually waking because of breathing issues. TMD then continued to point out that we’d been too lazy to try this.

Slap our wrists and call us sillies.

Um.

So ANYWAY, he’s now been prescribed steroid inhalers as well. Two puffs twice daily throughout the winter (ie, everything that is not summer), and four times daily when he gets a cold. Continue with the rescue inhaler as needed.

I’m curious to see what effect the steroid inhaler will have on his at home treatments, his hospital admissions, and HIS SLEEP. Oh, his sleep. Coconut sleeps soundly all night long, though waking and asking for a few sips of water once a night is common. Snort has slept like a rock these past few nights of breathing treatments, except when actually having the treatments.

Last night just before 11 pm, we did wake him to give him breathies. He cried softly throughout, clearly unhappy with us fucking up his sleep. When we finished, he said, ‘Yay!’ in a tiny, tired voice and clapped for himself. This is a milder version of the insane clapping and cheering we do post-breathies during the day, at which point Coco grabs the mask and proceeds to give herself a treatment.

The only other awesome IsThisAsthma news is that rather than the unshaped mask and giant volumatic spacer, we now have a tidy little tube spacer with teddy bears on it. The mask is shaped and soft, and the tube is petite enough that Snort can reach his own inhaler to help push it down – that is, when Coconut is not screaming that SHE is giving him the breathies.

(Two pounds down this week. That’s forty pounds lost. Just over halfway. Jesus.

Writing contest: Still in first place popularity wise, though I reiterate that means nothing officially as the judges make the first cut. Still, it’s making me feel more calm and confident about sharing. Please click here to view my MUST READ post about the contest and see a link to the chapter. Or click here if you’ve already read that post and want to read the chapter. Ratings and feedback welcomed, though you need to complete the ten second site registration to do so – and I found out last night that everyone who registers is entitled to a free book. You’d better believe I already ordered mine!

At this point I am brave enough to say that I am happy for you to share the link to the site on twitter, facebook, etc should you feel so inclined. I MAY just share it on my own Facebook soon.

That being said, I am having uncontrollable diarrhea so it’s clear the anxiety and self-judgment is still going strong.)

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2 Responses to “Breathies and sleepies.”

  1. mendylady Says:

    Forty pounds, wowie!!! and done the nice slow way, which means it’s real loss and not mere yoyoing.

    I’m sure you already have doctors all over this, but be careful with the steroids.. our very dear friend has had horrid asthma all his life, and now also has heart and bone density issues from the ‘roids.

  2. Christy Says:

    Poor little guy. I feel so bad for you all.

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