Resolve.

by

Saw The Best Doctor In The World this morning. She’s pretty hardcore awesome. In a system where most appointments are scheduled to take 4 minutes, she spent the better part of 40 minutes with me.

She’s going to try to refer me to the private specialist, but thinks that in reality she will have to refer me to the local pain clinic. They may offer an MRI, but in reality will be trying different techniques to manage the pain.  If they feel my case is too specialist or they cannot treat me, they will be the ones to get the funding to refer me to and pay for private treatment.

The original surgeon I saw recommended denervation. Yes, it’s like what it sounds like – effectively killing off my nerves in my SI joints. (There are two joints in the back of your pelvis, called sacroiliac joints. There is one in the front, which is the symphasis pubis joint. I get pain in all three joints, and also in my hips, as a result of my condition: pelvic girdle pain.)

Apparently with my super stretchy ligaments – that will never go back to normal, sigh – it’s not just my pelvis bones that are able to wobble about and go crazy. It’s my fucking nerves. They are not being held in position, which means they are being pinched and twisted, which causes part of the pain I have.

I said that I was the sort of person who preferred more gentle, less invasive treatment – that I didn’t want to kill off my nerves or have surgery until everything else had been tried. She agreed.

I’ve been given a prescription for something that was originally developed as an anti-depressant (ah, as so many medicines have been) but now is used to treat chronic pain. It essentially stops my nerves from giving such loud pain impulses to my brain. She said this is better than codeine, as codeine only dampens down the pain. She also said this is a longterm, take it every day medication. I take one pill an evening. If it doesn’t make me too sleepy the following day and is not working, in a few weeks I can double the dose at night.

She also said this is a medication the pain clinic will have wanted me to try, so by getting started now it makes my case more ‘serious’ to the doctors I’ll see, as I’ve jumped through most hoops of conventional pain relief.

My PGP/SPD essentially is something that can never be cured, but the pain can hopefully be managed. I still do plan to do core exercises – maybe not today as I’m still recovering from this recent horrible flare of the last couple of weeks – but soon. I am also starting Bowen therapy next Saturday. I’m currently taking Arnica (homeopathic medicine) and wearing my ‘magic’ necklace.

It’s like making a quilt. I am taking good information from every sort of specialist I’ve seen, and stitching that information together to create something tailored to me. I’m trying to incorporate as much as I can, because I do not want to live like this. I do not want this to be my life.

The doctor pointed out that while I am missing ‘the fun stuff’ with my kids, they will have received more psychological good stuff – stuff that needs to happen to infants for the first two years, stuff that is more important than going out all the time. She reminded me I am giving them a good sense of self, building their self esteem, etc. She said my kids would probably be getting more of this good self-building stuff because of my disability.

That’s nice. It is. I just want to give all that good stuff to my kids, without having to be housebound. Or bedbound, as is the case of the last two weeks or so.

And on that note, I’m going to have a rest now. I’m hoping to be able to go along with TMD, Snort, and Coconut this afternoon to meet my new niece, and need to rest from going out this morning.

Sigh.

Still, I’m feeling more positive because at least I’ve got this new medicine to try. At least I’ve got Bowen therapy to try. At least I’ve got the core exercises to try.

I refuse to believe that I will have to live with chronic pain and be disabled for the rest of my life. I refuse.

Do you hear that universe? I am going to get better. Maybe not right now, maybe not this year. But I will.

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7 Responses to “Resolve.”

  1. Christy Says:

    I’m so glad you found a great doctor. I really feel that is a huge part of the healing/health puzzle.

    Again I am so sorry that you have to go through all this pain. It’s just not fair.

  2. justtoomuchandenoughalready Says:

    Sounds v tough. Know a friend with chronic pain who has just been prescribed something that sounds like the meds you are describing and it is working very well for her, Hope is similarly effective for you.

  3. Katie B. Says:

    Good news!!

    Still a long, hard row to hoe, but every little bit helps.

    I love your quilt analogy!

  4. saralema Says:

    So happy you seem to have found a good doctor. Hope those drugs kick in and you are feeling some relief soon.

  5. Kylie Hodges (kykaree) Says:

    Good call on the denervation. Some anaethetists and surgeons are too quick to go down that path, and its not always permanent.

    I am sure the solution is there, and I hope you find it very soon.

  6. jenmum Says:

    Really pleased you have a good doctor. Hope the new medication works out for you.

  7. Bobbie Says:

    I hope your new medicine works wonders for you. Don’t give up, something somewhere will work for you. I think Coco and Snort are lucky to have a momma who spends so much time snuggling them.

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