The longest post ever?

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I have been sort of AWOL, lost in my own misery of intense chronic pain and the accompanying fears and despondency. It’s fun.

I am back in the land of the walking, but am in pain every second of the day. It’s not excruciating anymore, but it’s not great, either.

So that’s me.

We spent a lot of time at home last week, as I felt I needed a break (maybe I knew my body was about to collapse?), which sort of sucks as this week we had to spend a good chunk inside as the pain has been so bad. But as I said, I’m mostly physically functioning. We even went swimming yesterday.

I am scared, though. My last lot of pain injections were on the kids’ second birthday. I think they must have worn off by now, but recent pain is making me worry that they have only just worn off, and this is my true pain baseline, and I’m going to be like this forever.

I feel like this every single time I have a relapse. Like crippling hopelessness, terror, deep exhaustion from coping with the pain. Every single time I worry that this is forever.

And every single time I recover.

This painful blip has been going on for almost two months. It’s the longest it’s ever happened. I’ve also had recent pelvic instability – we are talking my pelvis full on wobbling around, with the gross accompanying clicks and cracking noises. I’ve not been like this since pregnancy.

So my blues are a little more blue this time. I think that’s okay, I think that’s expected.

But it sucks as I have little to no motivation to do things that need doing, especially as it exacerbates the pain. Tomorrow is our third social worker visit, and normally I’d spend a Thursday morning cleaning bathrooms, clearing the dining table of the assorted crap it collects, randomly dusting, etc. It has become an ongoing joke that if we had a social worker visit a week, the house would always look fucking amazing. Though I must say, as nice as the social workers are, I can’t wait for this shit to be over.

The forms are incredibly discriminatory and insulting to families like ours. Questions about what makes TMD qualified to raise children, asking other people and herself how she keeps them safe, and on and on and on. I am only angry about this in small doses, and the social workers are apologetic and very understanding, and on the whole the process is very smooth and straightforward. Hopefully we have tomorrow’s visit, then just one more (four in total)- excepting the court date where the kids get formally adopted. Maybe we will go out for cake afterwards.

But right now, the bigger picture for ME is thinking about how I hope I can walk into court without crutches, without pain, without having to always be conscious of how my body moves.

This afternoon we are going over to a friend’s house. We have started a tearaway rebellious new home education meet, a small group of families who rotate houses on Thursdays. We want our younger children to build up good friendships and have regular contact with the same kids, especially as these children will be some of the ones they grow up with and attend various classes and groups with. It’s an interesting group as two of the children have Asberger’s, one more severely and probably leaning towards full on autism. All in all, I like all the people, children and adults alike, and look forward to all our friendships growing. I’ll probably write more about this group in future, especially as I need advice on what to do if a fellow mama steals a toy from your house. Ha. No shit.

But today a family is ill, so it’s just us and this other family. I love the mum, love her to bits, and it is always a quiet relief to hang out with like minded people. Especially when they are all creative and shit, and there is no tv in their lounge, and you can see water from their back windows.

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2 Responses to “The longest post ever?”

  1. nobodysperfick Says:

    I’m sending warm thoughts your way. I’ve struggled with various intensities of chronic pain for the past 15 years and know all too well the fear and frustration you’ve described here. Wishing you peace and time spent pain free!

  2. mamacrow Says:

    I’m so sorry about the pain :( fingers crossed this is just a more severe blip than normal and you’ll recover asap xx

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